Posted in Baking, Beads, Cognitive problems, Emotions, Fiber, Pain, Peripheral neuropathy, Photography

The Coffee Cake Cupcakes Were Good

I’m doing better, but it was a horrible week. I had a nerve conduction study on Tuesday. I wasn’t afraid of what it would show; I was terrified of what it wouldn’t show. If the study showed tarsal tunnel, I’d be fine. That can be corrected surgically. If the study showed it wasn’t tarsal tunnel, I’d be stuck being in pain with not relief.

When the neuropathy flares, the pain routinely hits 7. The last time, it was bad enough that suicide looked like a good idea. I even planned out how I would do it. I’ve got a .22 calibre pistol. The advantage of a .22 is that it bounces around inside and cases more damage than a 9mm. I figured I’d use hollow point ammunition. Hollow point bullets are designed to flare upon impact and damage more tissue. If I held the pistol about an inch to the left of my breast bone, I’d be sure to blow a nasty, as opposed to nice, hole in my heart. I figured I’d have only one shot at killing myself and I wanted to make sure I wasn’t going to survive this shot. Naturally I’d do this outside so Jim wouldn’t be stuck cleaning up a mess in the house. Then I came up with a better idea. I’d go back to the neurology clinic at University of New Mexico and tell whatever neurologist was handy that I was tired of being ignored, I was tired of neurologists refusing to find out why I’m in pain and I was tired of being handed yet another prescription for yet another useless drug. So, if you can’t be bothered listening, let me put this in words you won’t be able to ignore. Bang. Why should Jim have to clean up any of the mess? Maybe, just maybe, one of those genius neurologists would start to listen to patients. And if not, at least I wouldn’t be in pain any more. I would just have to remember to tell Jim not to accept my body. Let the state pay for the cremation.

That scared the shit out of me.

The closer it got to the nerve conduction study, the more anxiety I had, the more depression I had, and the more terrified I was that I was going to have to commit suicide. I had Jim come to the appointment with me in case I needed him to talk me out of buying bullets on the way home.

One of the ways I deal with anxiety is to cook or to make art. I found a recipe for sourdough coffee cake and made coffee cake cupcakes. I brought them to my neurobiology class on Tuesday morning. The class enjoyed them. Then I started working on a quilt. More about the quilt in a few paragraphs.

When I got to the doctor’s office Tuesday afternoon, I filled out a good dozen pages of history and information. I had to list my allergies on at least three pages. I had to answer how much I agreed or disagreed with a list of statements.

“I enjoy talking to attractive people.” I wrote: You’ve got to be kidding me.

I spent an entire page writing about being suicidal and having a working plan for killing myself. I warned Jim that someone would probably be talking to him about me being suicidal. I expected to be sequestered in a room and have a police officer come in and try to convince me to go to a hospital. There are three ways to get someone into a mental hospital. Voluntarily go; commitment by court order; or if the person has committed an offense for which the person could be arrested, the police could take the person to a mental hospital for a mental exam without order of the court.

Under no circumstances would I voluntarily go to a mental hospital. I’ve visited friends inside of locked wards. They all have a glassy expression, talked like they were underwater, and shuffled when they walked. No thanks. I don’t need more drugs.

A court order takes time and I knew I couldn’t be held in a room against my will. I could get up and walk out of the doctor’s office. I knew I had to be extremely careful not to do or say anything that could be construed as a threat against another person.

So what happened? Nothing. No one talked to Jim. No one asked me about being suicidal. I doubt anyone read a word I wrote.

I told the doctor, a pain management specialist, that I wanted to be able to see the monitor during testing. So he told me about his experience. Somewhere in there, I mentioned I have an undergrad degree in biology. Unfortunately, I was facing the wall when he asked, “Are you a neurophysiologist?” “No. I’m an attorney.” I would have loved to see his expression.

I did get to see the graphs for a number of the tests. Because of my neurobiology class, I had a pretty good idea what I was looking at and I could keep up with the medical terminology. The tests showed a lowered amplitude on the action potential. Translated: the electrical impulse in my nerve wasn’t as strong as expected. I have a slower velocity than expected. Translated: the impulse travels down my nerve axon slower than “normal.” The tests also showed there had been problems with the axons connecting to my leg muscles, but I had grown new axons to take the place of the defective axons. That’s nerve regeneration and it does happen.

My nerves are dead or dying and this isn’t going to get better. Fortunately, I was too depressed to be suicidal. Yes, there are levels of depression so deep that one would have to feel better to commit suicide.

The pain management specialist said he had no way to treat me. That’s okay. I would never let this guy treat me. I told him the only reliable pain killer was making art. He tried telling me that was a diversion. No, this isn’t like Lamaze. The pain stays gone after I stop making art. I don’t think he liked hearing that. It’s tough to make money prescribing art.

I did some thinking the next day.  I realized I don’t have dead nerves. I know this because I felt every one of those impulses. Then I did some research. Then on Thursday I had a chat with my neurobiology teacher. I had some of the amplitude problem figured out although I had the wrong ion. I had the velocity figured out, although the problem might not be as bad as I thought. I looked at the results of blood work done in December. I remembered what my primary care doctor told me.

The blood work showed a mild potassium deficiency and my triglyceride level is way higher than it should be. My chiropractor told me that peripheral neuropathy is a metabolic problem. The potassium deficiency at least contributes to the neuropathy. I had been monitoring my blood glucose levels and keeping a food diary. My primary care doctor told me that the glucose levels are indicating a problem. I’m not diabetic or even pre-diabetic. My doctor told me that if I continue to monitor my glucose levels and learn what foods to avoid, keep exercising and keep losing weight, the triglyceride level should go down to normal. So that’s what I’ve been doing. My nerves have already proven they will regenerate. I’m hoping that fixing the potassium deficiency will reverse the neuropathy.

Here’s the quilt I’ve been working on. I have finished putting the beads on the dendrites. I’m working on quilting it. I’m quilting by hand around the dendrites and the axon. I’ll be quilting the graph for a healthy action potential on the quilt. The axon has vesicles containing neurotransmitters and one vesicle releasing neurotransmitters. Neurotransmitters are how nerves communicate with each other. Note that the neurotransmitters aren’t being accepted by any of the receptors (beads) on the dendrites.

IMG_5418IMG_5422

The working polite title is: Damn it, LISTEN to me.

The real title, which would keep this piece from ever being accepted into any quilt show on the planet, is: Get back here motherfucker, sit the fuck down and LISTEN TO ME.

I’m no longer suicidal. I’m working on getting healthier.

I got a new lens for the Canon. It’s a Tamron 18-400mm zoom telephoto. I’ve tested it out and I love this lens. It gives me way sharper shots than I was getting with a generic 75-300mm zoom telephoto. I even get sharp macro shots at 400mm. I went out to Soledad Canyon to do some shooting yesterday. My brain is still messed up from all the anxiety – anxiety that was worse than I had when I took a bar exam. I forgot my phone. I forgot I had used a custom white balance and neglected to switch back to automatic white balance. I’m shocked that the colors came out right. I forgot I had used exposure compensation and many of the shots are badly over exposed. At first, I thought there was a problem with autofocus. Nope. Autofocus is nearly silent.

Soledad Canyon 6 3-16-18Soledad Canyon 5 3-16-18Soledad Canyon 4 -16-18

I’m linking with Nina Marie here. Take a look at what other artists have done this week.

Looking for a one-of-a-kind gift? Please check out my store, Deb Thuman Art here.

Author:

I retired from the Public Defender Dept. November 12, 2015 after 16 health destroying years. Now, I'm a full time multi-media artist and writer on a new adventure. As an artist, I create with beads, fabric, fiber, and ceramic clay. Sometimes separately; sometimes in assorted combinations. You can find my on-line store at: www.debthumanart.com.

One thought on “The Coffee Cake Cupcakes Were Good

  1. I’m with you, damnit. My legs hurt so bad I want to scream most of the time. I had a doctor, well really a nurse practitioner who I thought “got it” but as it turns out she never bothered to look past what she already knew. I have a chronic condition, no cure, nevertheless she would come up with new solutions every appointment unfortunately they were solutions to problems I didn’t have. I get that it’s no fun treating someone who won’t get better, but jeez. Now I need to find a new doctor. I am not thrilled. I just checked, I have at least 6 months on the thyroid script so I can procrastinate just a little longer.

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